DAY 054 -- "Those Certain Uncertain Biggies"

I've now had my last immunotherapy infusion of the calendar year. Useless and meaningless trivia, but that’s just fine with me for now, because I’ve had enough profound, life-altering, on-your-mark-get-ready-set essential bulletins in the last few months to last me another lifetime, which it may well have to do.

(That’s an inside cancer joke.)

Today’s treatment was uneventful: the nurses know me and my rolling veins well enough now to never miss the puncture, and they always give me the right chair. I must have my back against the wall if I’m going to be sitting in public for a while. It’s the Wild Bill Hickock Syndrome.

Maybe that will change in this new year, as I’m more concerned with the killer in front of me than the one coming up on me from behind. Plus, I'm playing crossword solitaire, not poker.

(Another cancer joke, truly awful, but my license).

And, just incidentally, in my nursing career I’ve always given my patients the needle on “two” during a called three-count. “Ready? Okay, on three, ready? Now … One … TWO!” This way, the patient is in pre-flinch mode. Less tension, less pain, less chance of missing the mark. (You won’t find that method in any of the manuals.)

My oncology Doc checked in as usual during treatment, reviewing the latest labs, checking vitals, doing Doc stuff. At my request, he also brought up my new mystery lymph node image (see Day 052) on the computer to show Diane, who came along today to help hold up my fuzzy-saggy head. I again asked the Doc, as I always do, all the doomsday and V-Day hypotheticals.

Diane asked him, in her best fellow research biologist-speak, “When you do the biopsy, will the analysis be similar to the staging that was done on the subclavicular scan?”

She is my pearl. My sheet music. My lava flow. My sticky note. I love her. The Doc said great question, and gave her an answer that blew by me like a comet brushes by the earth, as my eyes shut down my ears. I’m okay with just watching the burst and receding flash of light and letting it go.

Much as I want to know everything about everything, I don’t have to.

Yes, yes, I know the Doc would rather not talk about what would happen if this happened when that happened, should the other thing happen while the first thing is happening … but that’s because he’s a good doctor.

Still, he also knows my mindset, and allows my always wanting to know the “best- and worst-cases,” obliging me the best he can. Yes, he’s concerned about the image, which is why he and his fellow consulting Docs want to get the biopsy next week, so we can rule in or out the goods and evils based on hard evidence.

Meanwhile, not knowing where things stand plays absolute hell with my imagination, but isn’t that common in all of us? Don’t we all let our minds run wild when it comes to those certain uncertain biggies in our lives?

Yes, we can and do conjure up most anything when we labor over what might be coming next in love, sex, death and where the fuck are the car keys.

More as we go, El

The Getting Cancer Disintegrating Boogie Blues

Time out of this diary for a note-worthy flashback:

I wanted to musically (and raucously) make an audio interpretation of what happened inside my head when I was told I had cancer this year.

There I was, boogie-bluesing along nicely in life, la-dee-do-dah, when ... POW! I have WHAT?
(Not to worry, I'm mostly back in my groove now, but my internal tunes did go off the rails for a while, and there just might be something to knowing how to play it right before you can play it wrong. I don't think Picasso could've gotten away with sticking an elbow out of an ear unless he'd first expertly placed it in the middle of an arm.)

This is also dedicated to dahlin' aerial-dancin' daughter Erin Lovett Sherman. When she was little, she thought I was Jerry Lee Lewis. Ah, the innocence and purity of youth. Enjoy!

DAY 053 -- "No Floating Pea"

I watched the Doc sift through the slices of my innards imagery, reviewing the results of the PET scan. When he nudged the trackball, dimensions of my organs and all their connective circuity flowed in and out like beach waves.

He gave me an analogy of a pea floating in soup, and because my attention span warps when it’s stressed and in the grip of my overactive imagination, I heard it in pieces. What did register and take hold in my head was that it’s better to have no floating pea.

My original tumor (soup) appeared to be pea-less. Good news, but the appearance of this new pesky lymph node seen in my recent comparative CT scan, remains the bugaboo.

Is it scarring? An anomaly appearing now as collateral damage from my course of Rad/Chemo? Is it a threat? Malignant? My Doc, in consult with his fellow oncologists, wants to get the biopsy as scheduled “to know what we’re dealing with.”

The image was ominous, a skyscape of jutting and sloping contrasts, rows of little devils moving through weeds of thick--- oh … wait ….

That’s a picture of my inside windshield when I was going through the car wash today. Sorry.

Even cancer sometimes needs a comic gotcha headbutt when you're looking the other way.

  

Meanwhile, back at the rest of my other whole body, he was pleased that I’ve dropped a couple of pounds, that I’m using the new elliptical, eating better, not quite as fatigued, and not picking at the sporadic and migrating skin eruptions. The latter is difficult, because when I was a kid, I kept a scab collection in a jar. It was fun looking at scraps of me flitting around in there when I shook it.

Later in boyhood, I added some dead moths for balance.

I had the same feeling today watching him scroll through my sub-layers, though he presented them with a bit more diagnostic sophistication.  

We did review my list of side effects (from Day Fifty-One) and he attributed them to the illness, the treatments, aging, a thousand or so other possible causes, and the maladaptations that can come with healing. We tweaked my uses of lotions and potions to ameliorate, perhaps even eliminate some of these sideshows as we continue this grand experiment.

Today, I’m feeling like what happens when Frankenstein teams up with Monty Hall in the funhouse mirror.

Somewhere in here, I'm behind one of those doors.

More as we go, El

DAY 052 -- "The Usual Posted Warnings"

 I don't know which is harder: trying to read between the shifting lines of body language or the scathing sounds of spoken language.

Today, at my Imfinzi infusion session, I also met with my oncologist to review the results of my recent chest CT scan.

His body language told me: “I’m concerned.”

Trouble is, so did his spoken language: “I’m concerned.”

So, I pressed him, knowing that he’d get as specific as he could, which is considerable, given his expertise. I also knew that he’d stop short of using a crystal ball. I threw mine away this past year, and this young Doc already has the wisdom to leave seering to the seers.

He deals in facts. Numbers. Ratios. Equivalents. Values. Imagery. Diagnostics. Degrees. Like this one, a before and after comparison (minus the phony Photoshopped brush-ups). This is my interior, courtesy of the art-science of tomography. 

Yes, there is a virtual slice of my chest: most recent on the left, three months ago on the right.

I’ll leave you to find “it,” like one of those picture puzzles with subtle differences in the same drawings. Ah, this one has a mustache; this one doesn’t. Find the missing shoe. One of these things is not like the other (done in your best sing-songy Sesame Street off-key).

Get the pictures? Get the errant lymph node.

Yes, good Doc will sometimes venture into prognostication, but not without first applying the caveats of possibilities and probabilities. With predictions, there must be a way out. That’s why crystal balls in my life are now junk novelties.

Not the best news today, so next up? Another PET scan and EBUS/Biopsy to dammit see which new pronouns and adverbs will be coming into play. Good thing I love the language: wordy or worn.

 Another dark door to go through, with the usual posted warnings.

More as we go, El

DAY 051 -- "The Earth Moved Its Moon To Mars"

Yes, we’re way off chronology here, but let’s forget about the numbers and sequence. Today is the fifty-first day of my recorded reportage. That’s all we need to know.

The more I travel along with cancer and treatment, the less important it is to have all my ducks in an ordered row (see Day Forty-Seven). Now, if they want to swim in crazy semi-circles out of sync, have at it. And, if they want, they can let in some geese for comic relief.

Ever recklessly optimistic, Diane and I also bought an elliptical machine on the oncologist’s advice: “low-impact, good upper and lower body, easy to pace, moderate.” He was right. Plus, I’ve come to be a friend of my body marking time and my mind moving with or without me.

I’m also playing more piano, returning to my muscle memories of old, sight-reading, even being bold enough to post a few videos. If the world conspires against it, I’m relaxing, having fun and abusing my rank amateur status.

  

Today, a return for a follow-up CT scan of my tumor. Today, we see if it’s better, worse or unchanged. Since the end of Rad Chemo, it’s been immunotherapy every other week. Six down, twenty to go.

Immunotherapy. All the logistics of chemotherapy without the balding, barfing and bruising. Yes, there’s a new and always evolving side effect list now, but with more annoyances than toxic disruptions.

Still comes the daily fatigue, sometimes predictably, giving me enough warning to prep for it: pull off the road, pull up a couch, stop a boring conversation. Other times, it’s just upon me: one minute ta-da!, the next a suddenly-sedated Gumby.

I’ve learned to effectively deal with it without hurting myself or anyone else. Then, there’s that list:

Shortness of breath

R-sided abdominal pain

Irritability

Ankles, feet and hands swelling

Rash/itch/blistering

Twitchy lower limbs

Fingers cramping/locking up

Fuzzy hamburger slippers (sorry, just checking to see if we’re all still sitting up straight in class)

I haven’t spoken to my docs about the above, but I will at my next treatment … along with today’s scan results.

Today, arriving home after the scan, I’m okay with this. I and my ducks and geese have learned how to wait.

Maybe the doc hasn’t called me because the results are inconclusive.

Maybe they’re awful.

Maybe he hasn’t reviewed them yet.

Maybe the earth moved its moon to Mars.

You’ll know when I know.

Oh, and one added attraction tonight: Creamy Vanilla Smoothie Readi-CAT 2 Barium Sulfate Oral Suspension contrast medium makes you (me) shit like a shark.

More as we go, El